From: debbie [mailto:debbiendavid@starpower.net]

Sent: Friday, May 21, 2004 9:22 PM

To: Marcia Jones

Subject: Letter

Marcia, I hope this is all you need. Beth did some editing on it to bring the paragraphs together. It is ok with me if you would like to do that too.  My new e-mail will be debbieanddavid@earthlink.net . Thanks so much. Debbie

Dear Dr. God,

You performed a hysterectomy on me November 11, 1996. Little did I know that would be the saddest day of my life. That surgery would create emotional grief and pain like I had never known could exist. My father’s death didn’t even come close to the grief and pain my hysterectomy caused me. Today I live my life with less than half of the me I used to be. I feel like I have died a thousand deaths.

I came to see you earlier that year because of pelvic pain. You prescribed Tylenol #3’s and later #4’s along with a little speech about how the doctor who had the practice before you had prescribed too much pain medicine for his patients. You spoke to me about your son who was on drugs and who, it sounded like, didn’t have much of a life because of the drugs. You also told me about a woman who was getting pain medication from the doctor who had the practice before. You told her she should get a hysterectomy. Then you scheduled her for surgery, and she didn‘t show up. After you told me this I felt like I should be obedient and not disappoint you. I was also feeling guilty about taking the pain medicine. Now I wish I would have done the same as that woman. She was the smart one. I am so sad I went through with it -- the saddest I have ever felt. Looking back, it seemed like you didn’t know where one person ended and another person began - like all the people in your personal life and in your practice were merged together.

You were a doctor who I found especially handsome and attractive, and I believe you knew it. I felt and feel ashamed of my attraction to you. When you first began seeing me, you sounded unsure of whether or not to give me pain medicine. But you prescribed it for me. I was anxious to do something about my pain especially when it sounded like the pain medicine would be in short supply.

I feel like you played me. You spoke of how your timing in resolving this matter was different than my timing. What timing had to do with anything, I’ll never know. All I know is I was tired of being in pain and wanted to do something about it. We talked

about the fact that I had a history of endometriosis. You were also informed I had a history of depression. The first time you came to see me after the surgery, you informed me you found very little endometriosis.

When we first spoke about treating my pain, you told me of a treatment using Lupron (I think), because you were sure my pain had to do with endometriosis. I heard something vague about Lupron and was worried about gaining weight and said so. Then you brought up hysterectomy. You made it sound as though it was a sure fire way to end the pain. Then you told me about the high cost of your insurance. However, I agreed to the hysterectomy, because you made it sound like it was the only way to treat my pain.

You never mentioned anything about how the surgery would affect me. You just gave me a pamphlet (like that was supposed to be enough of an explanation). I remember the pamphlet mentioning something about sexuality, but it said most women end up feeling more sexual. Today I say, how could that ever be. Maybe it could happen with one ovary intact but not with everything removed. When I read the pamphlet I was alerted about sexuality post-hysterectomy, but I never said anything to you because you were the doctor. You knew what you were doing. You would help me, never hurt me. I believed you had in mind what would be best for me - that this would cure the pain and then everything would be fine

I talked to other women who had had hysterectomies, and they said it was the best thing they could have done. Little did I know that these women had only one ovary removed, not both. I didn’t know there were different types of hysterectomies. I didn’t even understand I would be going through menopause until after the surgery when I was given estrogen. From what I was told the estrogen I was given would replace the estrogen my ovaries produced. I now know there is no substitute for the hormones your ovaries produce. I remember just before going under for surgery, I said I wanted testosterone. You said “no, it would make me too horny.” Whenever I think about putting on those white stockings before the surgery, my heart sinks right through me. Little did I know this would be the worst decision I ever made in my entire life. And I made that decision because I believed you.

As a direct result of my hysterectomy I feel the deadest I have ever felt. I didn’t even know a live person could feel this dead. I used to be a sexual, lively and vibrant human being. Before the surgery I was the most sexual I had ever been in my life (and that was very sexual). I had no idea this hysterectomy could kill all of that. I feel like I have only half of the heart and ambition I used to. And after all of this I still had pain. I still have pain today, but now I know the pain is and was from adhesions. And the adhesions were made worse by my hysterectomy.

Over and over, not only from you, but other physicians as well, I have been discounted, discredited and made to feel like I have been making up this pain - like it was “all in my head.” I want to know why? How could you? How could any of you?

Before the surgery I was also a sensual person, and by that I mean I was sensitive in my sight, sound, touch, smell and taste. I am an artist, or at least I used to be. I was a sensual

painter and that was my truth. I used to communicate this sensuality in my art. My art used to speak to people. It said look at this, feel this, hear this, smell this, touch this maybe in a way they would not have before. I no longer feel capable of doing this. There is no basis for it as there was before. The feeling I have left is flat except for the squeezing pain.

I no longer feel sexual since my hysterectomy, and it happed to me practically overnight. I feel a love of some sort but not like the embracing love I used to feel. I was a very passionate person, but that has gone too. I can still have orgasms, but I have to concentrate so hard to have them. I used to feel an energy and power build up in me that needed release. Since the hysterectomy it no longer exists. It used to drive me crazy to have my nipples caressed. Now I can barely stand to have them touched. I used to be ready with wetness for sex. Now I’m dried up. I even get jealous of my husband’s sexuality because I used to feel what he feels, and now it is gone.

About a month or so after the hysterectomy, I made an appointment to see you. As I was walking in your office, you had just come out of another and was talking to a pregnant woman. You told her in front of everyone there she should have more orgasms. That visit I came to tell you I no longer felt sexual. You proceeded to tell me about a woman who worked for you on who you performed a hysterectomy. She had been angry with you because she no longer felt sexual. Then you said she found a man and everything was fine. I wish I could perform castration on you, and when you would tell me how you no longer felt sexual, I would tell you to find a woman and everything would be fine. Over and over I have wished I could do to you what you have done to me! Then and only then would you be able to completely understand how less of a woman I feel - how less of a human being.

At that time you prescribed an estrogen with methyl-testosterone. All it did was make me break out and made me mean. You said it was too much for me to take. I still take methyl-testosterone in gel form. I’m afraid to stop taking it because I am afraid the very little bit of sexuality that still exists in me (in a mutated form) will be gone. Not only that but information I have sought explains testosterone is good for your heart. I don‘t want to stop taking any of the hormones I take even though they can never replace the hormones my body used to make.

About five or six months later I wrote a letter and read it to you in your office. I tried to explain what had happened to me because of the hysterectomy. I got confused and mixed up. I couldn’t say what I wanted to. I didn’t have the information or the words I have today. It was very frustrating to know there was something radically different about me after the surgery but not be able to say what it was.

Also as a result of my hysterectomy I haven’t had a good night’s sleep in seven years and have problems having regular bowel movements. I can’t begin to tell you of all the money I have spent to no avail. October of 2002 I had yet another surgery and, once again, adhesions were removed. These adhesions were attached to my colon. But these problems and the pain are back again.

You doctors don’t know what you are removing from our bodies when you remove our reproductive organs. I believed the worst that could happen as a result of the hysterectomy would be I would never be able to have my own children. Being single and 40 years old, I was not even concerned with this. How wrong I was. Because of you I have felt misled, unbelieved, unimportant, used, betrayed and lied to. Ultimately I felt like I was kicked to the curb and forgotten. After all my hysterectomy had helped pay for the high cost of your insurance. Then you didn’t need me anymore. For this I have paid a price with my very life. Even though I’m still alive I feel I walk the earth as a dead person. No one deserves to go through what I went through. No one.

Sincerely,

Debbie